THE BAUHAUS MOUSE
I participated in hackathons when an opportunity arises. On this occasion, I connected with people who worked on rare genetic diseases. This was a project that still to this day I would consider as important as coming from life science before UX, it was great to be able to use user-centered design methods to approach an issue in life science.
The problem was that patients with rare genetic diseases often had limited reach to connect with specific doctors who specialised in particular conditions. There were long discussions with subject-matter experts on the challenges of patients with rare genetic diseases. There were interviews with a doctor to narrow down how the platform could create better accessibility for patients with rare conditions.
Being part of the team, I was able to contribute to ideation, persona, user journey, and the business canvas model. Possible features were mapped out for the platform and finally decided that DNA sequencing and finding mutated DNA by comparing with parents could be used to create a diagnosis and further research.
The user journey was a breakdown of the steps patients will undertake when they reach out to rare genomic institutes. The platform brings patients and researchers together by a network. The platform provides a service of matching a researcher to a patient leading to DNA sequencing, research, and clinical recommendation.
